One of my lovely readers has sent me a message about approaching a GP to talk about the possibilities of having lipoedema.
My typing isn’t great at the moment due to my surgery 2 weeks ago. I’ve enlisted a scribe to share my thoughts on how I could have got a better experience as part of my diagnosis.
- Make sure they know all of the symptoms that you experience- be honest about the pain!
- Ensure they know that lipoedema is progressive and so time is crucial. My lipoedema seemed to increase very rapidly after 30. Especially my arms. If you choose to go down the surgery route its better to do it sooner rather than later. No one want skin lifts after too!
- Online your doctor can access information about lipoedema at the link here. http://www.lipoedema.co.uk/news/gps-and-lipoedema/ It would be a good idea to check this information out yourself.
- You are entitled to compression for lipoedema, it will help you to wear it.
- Be clear about weight being impossible to loose from limbs even when you diet.
- Ask to be referred to a lymph clinic. (there isn’t one locally to me so I wasn’t able to access any support)
I personally didn’t really have any support from the NHS at all, I was passed around lots of different departments to no avail. My detailed, official diagnosis came from Mr Karri from the Karri Clinic in Hull. The consultation fee I paid to talk about my legs was worth every single penny. Consultations are not hard sell either, it was truly an absolute relief to hear exactly the type of lipoedema I had and what could be done about it. The report I received post consultation really was exceptional.
The main piece of advice I would offer ladies would be to persistent with their GP but be aware that not very much will be offered as treatment. . I would recommend going straight to the Karri Clinic – its been life changing for me.